I’m living on the edge; how can I do this?  Life slipping from my grasp like sand through fingers I don’t want to die; I don’t want to miss Yet at this moment, so fragile, my life only lingers I look at others and feel pangs of jealousy […]

I start off with a * — I am posting this Saturday 27th February as I was really poorly Friday evening, night and most of today. Nearing 40˚ fevers, feeling absolutely horrid, in and out of sleep, sweating, rigors, headache, muscle pains and more. Not pretty. I’ve barely […]

This week has been an interesting one. It’s been a week of tough conversations and trying to come up with a plan.  Symptoms wise: the fevers continue on and off, and with that comes chills, sweats, episodes of rigors, bone and muscle pain, neck pain, nausea and more. […]

Today Victoria, my sister, was here. We had been unsure how to get her to come over to talk about things, without making her worry unnecessarily. Fortunately she offered to come today, and so we had a conversation. Mum asked her to come into me to talk and […]

I write this at the end of January and early February 2021, following a few months of stark realisations and a new normal to cope with. I want to reflect on the last 5 months of life, to share a journey not many realise I have been on. […]

You may be wondering why I’m starting a new blog. If you already know me, you may know some of the journey I’ve been on and you will know to find me on my “normal” (now business) website. I felt a new site was necessary as my old […]

I wanted to post my TEDx talk from TEDxNHS 2019 which is so relevant to the subject matter of this blog – living life, talking about dying, accepting our own mortality, making preparations for life and end of life, and good experience of health and care, including good […]